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Sample Text for Your Email
Subject: Support Legislation and Funding for the research and screening of Congenital CMV in pregnant mothers and their newborn children
To: Sen. LAST NAME
DATE
Dear Senator LAST NAME:
As a concerned citizen of STATE and a MOTHER/FATHER/FAMILY MEMBER of a child born with congenital CMV (Cytomegalovirus) disease, I am urging you to initiate legislation to further awareness and funding for the research and screening of congenital CMV infection in pregnant mothers and their newborn children so that every child has a fair start in life.
Each year in the United States, an estimated 30,000 children are born with congenital CMV infection, causing an estimated 400 deaths and leaving approximately 8,000 children with permanent disabilities such as hearing or vision loss, or mental retardation. The direct annual economic costs of caring for these children are estimated at $1-$2 billion. More children are adversely affected by congenital CMV disease than by several better-known childhood diseases or syndromes such as Down Syndrome, Fetal Alcohol Syndrome and Spina Bifida.
Please ensure that all children have a fair start! Please demonstrate your commitment to children and families in STATE and across the United States by initiating legislation to fund research and screening for congenital CMV. More information about congenital CMV disease can be found at www.cdc.gov/cmv and www.stopcmv.com.
Thank you for your time.
YOUR FULL NAME
YOUR CITY AND STATE
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Testimonial
"Thanks for your website. I am currently pregnant. Before I got pregnant, I got tested, but found I was not previously exposed to the CMV virus. I have been as careful as I can during my pregnancy so far. When I asked my OB to test me again at 16 weeks, I was pretty much treated like I was being silly. And when I talk to people about CMV they seem to act like it is just silly to even worry. I hope through websites like yours more people would take this seriously..." - Anonymous
Perhaps no one is able to give greater insight into living with congenital CMV than the parents of those children and adults born with this disease. Click here to read their stories.
Lisa Saunders
"Sixteen years after her birth, I awoke feeling so proud of Elizabeth on her birthday. She had fought hard to stay with us in the land of the living, surviving several bouts with pneumonia, seizures and surgeries". ... more
Melissa Prosper
"For the rest of my pregnancy I got bounced around from specialist to specialist for all kinds of testing. I had MRI's and ultrasounds and with all of them came more bad news. It seemed like every doctor had no hope for him"... more
Rosemary Carter
"Two days after his birth, he failed his newborn screening in both ears. He didn't like being held because he liked to bend his back backwards a lot. He failed all hearing tests and we did an ABR"... more
Sharon Caldwell
"As a new mom I believed she was just a little slow and she would catch up (she was 3 months) but I did as the doctor wanted and that is when all the tests began"...more
more parents stories Share your CMV Story
Please include details about you and your child's experience with congenital CMV. You're encouraged to include information about your pregnancy, delivery, diagnosis, prognosis and how your child is doing. Feel free to write about your thoughts and feelings as you have raised your CMV child.
Your experiences will encourage and strengthen other CMV parents and will offer the public invaluable insight about the CMV virus. These compelling stories can be the key to positive change - policymakers, the press, and other key influencers will learn more about congenital CMV and its profound impact, largely unseen around the United States and the world, until now...
Send your story to: email@stopcmv.com.



