Stop CMV and The CMV Action Network is proud to have an all volunteer board and staff.
Janelle Greenlee, President and Founder
janelle@stopcmv.com
CMV mother
Background in Marketing and Public Relations, with experience in business strategy, brand management and program development
Dr. Gail Demmler-Harrison, Director
gail@stopcmv.com
Director of National Congenital CMV Disease Registry, Director of Diagnostic Virology Laboratory, Texas Children's Hospital, Professor of Pediatrics, Infectious Diseases Section, Baylor College of Medicine, Houston, Texas
Wade Chambers, Director
wade@stopcmv.com
20 years of Product Development and Software Engineering experience in the Enterprise Software, Internet Sites and Services (Consumer and e-Commerce), as well as the Hosted Services industries
Don Sargent, Director
don@stopcmv.com
Past California State Director and National Committee Chairman for the IBAA, Served as President and on the Board of Directors for The Arc (formerly The ARC) and on the Board of Directors for the United Way
Lynn Pickus Psy.D., Director
lynn@stopcmv.com
CMV mother
New York State Psychologist with an extensive background in school and community Psychology, including research and program development
Jilleen Taylor, Director
jilleen@stopcmv.com
15 years of experience as an Educator, Program Coordinator and Administrator in the Los Angeles public school system
Heather Key, Treasurer
heather@stopcmv.com
CMV mother
10 years as an Administrative Manager with experience in Bookkeeping and Accounting, as well as Project Management
William Greenlee, Secretary
william@stopcmv.com
CMV father
10 years as a Project Manager with a B.S. in Management, experienced in business development and strategy
The mission of Stop CMV and The CMV Action Network is to prevent and eliminate congenital CMV and to improve the lives of all people affected by congenital CMV.
We envision a world in which babies no longer are born with congenital CMV. Children and adults living with congenital CMV thrive in a barrier-free world that offers ready access to an array of effective treatment options, medical care, and community support. Their individual life choices and opportunities are not influenced by congenital CMV and all experience rich and personally fulfilling lives.
About Stop CMVSince 2003, Stop CMV has been working to foster congenital CMV awareness via internet and public awareness campaigns.
The CMV Action Network is comprised of families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus. We realize that the incidence of children born with congenital CMV can be greatly reduced with grassroots public education and awareness.
Additionally, we hope that women, families and friends will become familiar with the CMV virus and will take vigilant steps to prevent infection. We believe that it is better for women and their families to learn about CMV well prior to pregnancy in order to be well informed and take preventative actions.
Read Parents StoriesPerhaps no one is able to give greater insight into living with congenital CMV than the parents of those children and adults born with this disease...
Every year in the United States alone, thousands more children are born with congenital CMV. Their parents experience an unspeakable fear and pain as they learn more about this disease and its effects and as they piece together what life will look like for their children and their families...
Founder's Message"In 2003, I created this website with one of my 3 month old twin daughters cradled on my chest, sleeping soundly. Rachel, as well as her twin Riley, was born infected with congenital CMV. Profoundly affected by the virus, Rachel is half of my inspiration and motivation for this organization and website. Over five years later, we are still pressing forward in our commitment to raise public awareness about CMV and the creation and support of a network dedicated to the prevention of future cases of congenital CMV." - Janelle Greenlee, Founder/President