Model Noelle poses in a Stop CMV T-shirt Stop CMV and The CMV Action Network

Since 2003, Stop CMV has been working to foster congenital CMV awareness via internet and public awareness campaigns.

The CMV Action Network is comprised of families, friends and medical professionals personally affected by CMV and committed to public education efforts to prevent future cases of the virus. We realize that the incidence of children born with congenital CMV can be greatly reduced with grassroots public education and awareness.

Additionally, we hope that women, families and friends will become familiar with the CMV virus and will take vigilant steps to prevent infection. We believe that it is better for women and their families to learn about CMV well prior to pregnancy in order to be well informed and take preventative actions.


Read Parents Stories

Perhaps no one is able to give greater insight into living with congenital CMV than the parents of those children and adults born with this disease...

Every year in the United States alone, thousands more children are born with congenital CMV. Their parents experience an unspeakable fear and pain as they learn more about this disease and its effects and as they piece together what life will look like for their children and their families...

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Founder's Message

"In 2003, I created this website with one of my 3 month old twin daughters cradled on my chest, sleeping soundly. Rachel, as well as her twin Riley, was born infected with congenital CMV. Profoundly affected by the virus, Rachel is half of my inspiration and motivation for this organization and website. Over five years later, we are still pressing forward in our commitment to raise public awareness about CMV and the creation and support of a network dedicated to the prevention of future cases of congenital CMV." - Janelle Greenlee, Founder/President

Testimonials

"Thanks for your website. I am currently pregnant. Before I got pregnant, I got tested, but found I was not previously exposed to the CMV virus. I have been as careful as I can during my pregnancy so far. When I asked my OB to test me again at 16 weeks, I was pretty much treated like I was being silly. And when I talk to people about CMV they seem to act like it is just silly to even worry. I hope through websites like yours more people would take this seriously..." - Anonymous


"I have been angry for so long about what this virus has done to my son. It is time to channel that anger into something good and worthwhile to help others who may suffer...I am so glad I have found this website!" - Anonymous

Board of Directors

  • Dr. Gail Demmler-Harrison

    Dr. Gail Demmler-Harrison

    Director, National Congenital CMV Disease Registry, Director, Diagnostic Virology Laboratory, Texas Children's Hospital, Professor, Pediatrics, Infectious Diseases Section, Baylor College of Medicine, Houston, Texas... more

  • Wade Chambers

    Wade Chambers

    20 years of Product Development and Software Engineering experience in the Enterprise Software, Internet Sites and Services (Consumer and e-Commerce), as well as the Hosted Services industries... more

  • Lynn Pickus

    Lynn Pickus Psy.D.

    CMV mother and New York State Psychologist with an extensive background in school and community Psychology, including research and program development... more


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